Official Charity of


 

Resources

National Duchenne Organizations:

Charley’s Fund
Stockbridge, Massachusetts
Phone: 413.298.4300
Toll Free: 1.877.436.3363 or 1.877.4.END.DMD
Tracy and Benjamin Seckler, Charley’s Mom and Dad
Amy Jaeger, Office Manager
Email: amy@charleysfund.org
Website: charleysfund.com


Coalition Duchenne
Cath Jayasuriya, Founder and President
Newport Beach, California
Email: catherine@coalitionduchenne.org
Website: coalitionduchenne.org

Connect Kids Summer Camp Fund
James Lacerenza, Founder
Newark, New Jersey
Phone: 973.757.6000
Email: mdactkids@gmail.com
Website: mdactkids.org

Cooper’s Cure
Hermosa Beach, California
Cathy and Scott Jones, Founders
Website: cooperscure.org

Cure Dale’s Duchenne
Gainesville, Florida
Rick and Lelia Ginder, Founders
The Gainesville Community Foundation
Phone: 352.367.0060
Fax: 352.378.1718
Email: ginders@curedalesduchenne.com
Website: curedalesduchenne.com

Cure Duchenne  
Corona Del Mar, California
Debra Miller, President
Phone: 949.872.2568
Email: debra@cureduchenne.org
Website: cureduchenne.org

Darius Goes West
Athens, Georgia
Phone: 706.613.7237
Email: dariusgoeswest@gmail.com
Website: dariusgoeswest.org

Duchenne Muscular DystrophyResearch Fund
Encino, California
Kyle Kyllan, President
Phone: 818.692.5500
Email: kyle@dmdfund.org
Website: dmdfund.org

Dylan’s Footprint
Greenlawn, New York
Phone: 631.754.5360
Email: info@dylanfootprint.org
Website: dylansfootprint.org

The Foundation to Eradicate Duchenne
Alexandria, Virginia
Joel Wood, President
Phone: 703.683.7500
Fax: 703.683.4482
Email: information@duchennemd.org
Website: duchennemd.org

Gals for Cal  
Boston, Massachusetts
Cindy Quitzau, Mother
Website: galsforcal.com

Hope for Gus
Francestown, New Hampshire
Steve and Tonya Dreher, Parents
Email: hopeforgus@yahoo.com
Website: hopeforgus.com

Hope for Javier
East Setauket, New York
Rich Romero and Jen Portnoy, Parents
Email: Jen@hopeforjavier.org
Website: hopeforjavier.org

JBS Keys to DMD
Norwood, Massachusetts
Beth and Jeff Harvey, Founders
Phone: 781.269.1175
Email: jb@jbskeys.org
Website: jbskeys.org

Jett Foundation
Kingston, Massachusetts
Christine McSherry, President
Phone: 781.585.5566
Email: info@jettfoundation.org
Website: jettfoundation.org


Liam’s LEEP  
Norwood, Massachusetts
The McGourty Family
Website: liamsleep.com


Living for Today, Preparing for Tomorrow
Website:
livingfortoday.org

Muscular Dystrophy Association
Tucson, Arizona
Phone: 1.800.572.1717
Email: mda@mdausa.org
Website:
mdausa.org
Muscular Dystrophy Family Foundation
South Indianapolis, Indiana
Phone: 317.923.MDFF

Toll Free: 800.544.1213

Fax: 317.923.6334
Website: mdff.org


Parent Project Muscular Dystrophy

Hackensack, New Jersey
Pat Furlong, Founding President and CEO
Phone: 201.944.9985
Toll Free: 1.800.714.5437
Fax: 201.944.9987
Email: info@parentprojectmd.org
Website: parentprojectmd.org

Race MD

Portland, Oregon
Phone: 503.278.3273
Fax: 503.228.5381
Email: info@racemd.com
Website: racemd.org

Ryan’s Quest

Hamilton, New Jersey
Maria and David Schultz, Founders
Phone: 609.947.3611
Email: info@ryansquest.org
Website: ryansquest.org

Romito Foundation

Firestone, Colorado
Richard Romito, President
Phone: 303.718.2538
Email: richard.romito@romitofoundation.org
Website: romitofoundation.org


Ryan’s Hope
Plainville, Massachusetts
Scott and Linda Hastings, Founders
Phone: 508.699.3888
Email: info@hopeforryan.com
Website: hopeforryan.com

Suneel’s Light
Williamsville, New York
David Korzak, President
Kenneth A. Manning, Vice President
Phone: 716.880.5590
Email: suneelslight@gmail.com
Website: suneelslight.org


Save our Boy Foundation  

The Woodlands, Texas
Heinrich and Heather Meermann, Founders
Phone: 713.494.1102 or 713.392.6001
Email: mailbox@saveourboy.org
Website: saveourboy.org

Team Joseph

Commerce TWP, Michigan
Marissa Penrod, Joseph’s Mother
Website: teamjoseph.info

Two Smiles one HOPE

Fayetteville, New York
Matthew and Alison Willis, Founders
Phone: 315.415.4414
Fax: 315.637.8234
Website: twosmilesonehope.com

Teens for Duchenne –– Coming Soon!

Newport Beach, CA
Website: teensforduchenne.com

Zack Heger Foundation

Norwell, Massachusetts
Margie and Rodney, Founders
Phone: 617.529.9612
Phone: 781.204.9002
Website: zackhegerfoundation.org

International Duchenne Organizations
:

Action Duchenne  
London, United Kingdom
Nick Catlin, CEO
Phone: 020 8556 9955
Email: nick@actionduchenne.org
Website: actionduchenne.org

Aktion Benni & Co

Bochum, Germany
Phone: +49 2327 960458
Fax: +49 2327 605533
Email: info@benniundco.eu
Website: benniundco.eu

Duchenne Family Support Group

London, England
Phone: 0870 241 1857
Family Helpline: 0800 121 4518
Email: info@dfsg.org.uk
Website: dfsg.org.uk

Duchenne Foundation for boys with Duchenne Muscular Dystrophy

Australind, Australia
Pam Bianchi, Secretary
Phone: 08 97971236 or 1300 70 60 89
Email: pam.bianchi@duchennefoundation.org.au
Website: duchennefoundation.org.au

Duchenne Heroes

Amsterdam, Netherlands
Phone: 088 366 54 60
Email: info@duchenneheroes.nl
Website: duchenneheroes.nl

Jesse’s Journey
London, Ontario Canada
John Davidson, Founder
Phone: 519.645.8855 ext. 222
Fax: 519.645.2242
Email: johndavidson@jessesjourney.com
Website: jessesjourney.com


UPA! Cura Duchenne
Mexico
Website: upaduchenne.org

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